It has been a very long time since we last wrote, but yesterday was such a banner day that we are compelled to share it.
Melissa called me at work yesterday and asked, "Do you want to hear some good news?" She proceeded to tell me that Ruby's neurologist had finished reviewing her latest EEG. The verdict: Ruby's brain no longer shows any signs of being at risk for seizures and we can begin to ween her from her two anti-seizure medications! While it doesn't really affect her recovery, as it has been a very long time since she's had any seizures, it is still an answer to all of our prayers! It certainly is a wonderful milestone for us to have reached on this two and a half year journey.
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| Ruby getting her latest EEG electrodes on. |
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| "The hat" |
In the meantime, Ruby has continued to work hard in her speech, occupational, and physical therapies. At this point, her speech is typical for a soon-to-be five-year-old. And speaking of being five, this fall Ruby is all set to start kindergarten in a typical class. We're so proud of how much she's accomplished to get there. She has continued to improve the strength of both her right arm and leg. In fact, as you'll see in the videos below, she is managing to ride scooters, bikes, and even catch balls!
It has been so fun watching Ruby continue to grow in her big sister role, as well. Ruby and Molly have really become the best of friends. No doubt, Molly sure looks up to her sister and wants to be just like her. Melissa and I find this to be a particularly wonderful blessing as we both remember, quite vividly, praying constantly that these two would be able to share in this relationship.
This picture is indicative of what we just love about Ruby. Even after all of this stuff - therapy, medical tests, doctors appointments, and preschool nearly always five days a week - Ruby is easily one of the happiest people around. She even still wakes up - early in the morning - singing and ready for each day.
God is good.
